Living With Fabry by Ben's Friends

Living With Fabry - A Ben's Friends Patient Support Community

Foot and Float 2019 Report

Well we did It! 500 plus miles on foot and afloat to raise awareness that although WE HAVE RARE DISEASE -RARE DISEASE DOESN’T HAVE US and to raise money to start new Ben’s Friends Communities.

We started the night before departing for Glacier National Park. McKenna caught her first West Slope Cutthroat Trout:

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cuthroat

You Can’t Rollerskate in a Buffalo Herd!
Nothing cooler than running into the main herd at the National Bison Range. Nothing WORSE than to have a tire blow out in the middle of the herd and change it with this suspicious fella supervising:

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bison

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george2

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goat

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ford

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avalnche2