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WelcomeWelcome to Living With Fabry online Support group for patients, friends and families effect by Fabry Disease
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Bens FriendsOur mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Fabry 101Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
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New Member IntroductionsNew members, start your experience here. Introduce yourself and share your story. Let us welcome you.
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1
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General Fabry DiscussionOpen discussion about issues common to all with Fabry
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Symptoms & TreatmentAnything you have found that helps your symptoms.
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2
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Emotional SupportFeeling down? Need to rant? This is the place!
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1
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Complementary TherapiesThis is the place to discuss all the healing modalities that help you cope with Addison’s and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.
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Recommend a Doctor, Therapist, or ClinicWant to recommend a doctor, therapist, or clinic? Positive review only, please.
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1
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NewsNews from Bens Friends
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Site FeedbackDiscussion about this site, its organization, how it works, and how we can improve it.
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