Welcome to Living With Fabry online Support group for patients, friends and families effect by Fabry Disease

Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Fabry 101

Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

New Member Introductions

New members, start your experience here. Introduce yourself and share your story. Let us welcome you.

General Fabry Discussion

Open discussion about issues common to all with Fabry

Symptoms & Treatment

Anything you have found that helps your symptoms.

Emotional Support

Feeling down? Need to rant? This is the place!

Complementary Therapies

This is the place to discuss all the healing modalities that help you cope with Addison’s and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.

Recommend a Doctor, Therapist, or Clinic

Want to recommend a doctor, therapist, or clinic? Positive review only, please.


News from Bens Friends

Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.